Soc Sci Med. Duijts SF, van Eqmond MP, Spelten E, et al. Hisamura K, Matsushima E, Tsukayama S, et al. If you do not receive an email within 10 minutes, your email address may not be registered, By using this website, you agree to our J Cancer Surviv. and you may need to create a new Wiley Online Library account. 2008;23:945–63. 2005;60:1–12. First, sex, age group, and presence or absence of recurrence were selected as covariates that should be adjusted based on clinical judgment, and propensity scores for these covariates were estimated using logistic regression models. This research was not a qualitative study. 2002;87:1099–104. Hagedoom M, Sanderman R, Bolks HN, et al. In the present study, difficulty for cancer patients and their spouses in dealing with social problems was investigated and compared. Social support has been found to be empirically related to influencing health outcomes. Quinn GP, Goncalves V, Sehovic I, et al. Cancer. My husband and I rely on each other. However, a merit of an internet-based survey is that it guarantees anonymity and allows participants to respond without worrying about health care providers. California Privacy Statement, Depression, cancer-related post-traumatic stress, or other emotional problems. The datasets used and/or analyzed during the current study are available from the corresponding author on reasonable request. The journey is both challenging and costly, and many experiencing it for the first time feel lost about how they should handle the changes cancer brings. Recent studies have increasingly reported on physical problems associated with cancer and its treatment and psychological problems, such as anxiety and depression. Second, these labels were used as the subcategories of this list. A diagnosis of cancer can throw all of these things into disarray. Problems at home. Similarly, Dr. Naoto Ueno (@teamoncology), Executive Director of Morgan Welch Inflammatory Breast Cancer Research Program and Clinic at MDACC, did not feel that patients’ use of social media should have boundaries, as long as they are truthful about what they share online. PubMed Central  Subjects were 259 patients who developed cancer within the previous five years and 259 patients’ spouses; the data were derived from two surveys in 2010 (patients) and 2016 (spouses) whose participants were not part of the same dyad but matched by propensity scores, estimated for age, sex, and the presence or absence of recurrence. 2018; https://doi.org/10.1002/pon.4703. 2627 Doctors do not recognize about 35% of these cases and many patients remain untreated. Second, because of arrangements for this study and funding issues, several years passed between the patient and spouse surveys, and we were unable to collect data from patient-and-spouse pairs. Spouse caregivers provide the most extensive and comprehensive care, maintain the caregiver role longer, tolerate greater levels of disability than other caregivers, and experience more severe lifestyle adjustments [11]. Palliat Med. BMC Cancer. Hodges et al. Google Scholar. Factor analysis produced a four‐factor structure with components labelled daily living, relationships, economics and emotions. The poor results of the treatment and aggravation of the symptoms often bring about a crisis of doubt on the part of the patient with regard to his doctor. Sign in to set up alerts. 2008;17:606–11. Supports open access. Furthermore, t-tests were also performed to analyze differences in the degree of the difficulties for the following combinations of subgroups: between the younger generation (≤39 years) and middle-aged and older generation (≥40 years), and between male patients/female spouses and female patients/male spouses. 1). According to the KJ method, social difficulties were classified into 14 labels. A number of oncology-specific questionnaires have been developed encompassing aspects of social assessment including the 59-item Cancer Rehabilitation Evaluation System short form (CARES-SF) Schag and Heinrich, 1991), the 61 … Support Care Cancer. The present study aimed to identify cancer-associated social problems from the perspectives of both patients and their spouses and to compare and analyze differences in their problems. 2017;11:211–32. Kobayashi K, Morita S, Shimonagayoshi M, et al. Most humans are the best they can be. Thus, the present study aimed to investigate the degree of social difficulties experienced by cancer patients and their spouses, to identify cancer-associated social problems from the perspectives of both patients and their spouses, and to compare and analyze differences in their problems. OBJECTIVE: Little is known about the social problems experienced by cancer patients in non-Western countries. 2016;34:259–67. Diagnosis of and treatment for cancer may not only create physical and emotional difficulties for patients but may also have an impact on social aspects of patients' lives. Most patients who have survived cancer will feel both a sense of “survivor’s guilt” and a sense of doom whenever there is a complication or progression in a patient who has similar disease. Determinants of quality of life in patients with cancer. The study asked participants about their access to insurance, services, and providers, and direct and indirect costs of treatment. The degree of difficulty was higher in the patient than the spouse group for all subcategories except “difficulty in seeking expert advice on the disease state and treatment (lack of opportunities to consult for patient transfer arrangement, hospital selection, second opinion, psychological counseling, etc. Google Scholar. Evaluation was undertaken using data from an earlier study of 505 patients who completed the checklist. The checklist is a useful tool for highlighting problems. J Clin Oncol. 4.4 CiteScore. statement and A spectrum of hidden morbidities among spousal caregivers for patients with cancer, and differences between the genders: a review of the literature. Financial hardship associated with cancer in the United States: findings from a population based sample of adult cancer survivors. The present study has several limitations. Assessing the social impact of cancer: a review of available tools. The spouse is the primary informal caregiver for cancer patients, and can experience high levels of stress, potential burnout, depressive symptoms, marital distress, poor health, and unmet needs [12, 13]. It is … Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. Helping patients navigate their way through all this to ensure that they can genuinely provide educated and informed consent to treatment plans demands excellent communication skills from the healthcare … Health care providers should show sufficient concern for both patients and their spouses, particularly young and female spouses. We chose this approach because we study social systems and social problems peculiar to Japan that cannot be measured by existing social problem scales. When the patients and spouses were matched based on the propensity scores calculated from logistic regression models, 259 subjects were selected from each of the patient and spouse groups (Fig.

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